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“Zorgverzekeraars krijgen geen toegang tot het EPD. Een bepaling in de EPD-wet waar een aantal uitzonderingsgronden worden genoemd waarbij een zorgverzekeraar toch toegang zou krijgen tot het EPD, wordt op verzoek van het College Beschrerming Persoonsgegevens (CBP) geschrapt.”
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“De invoering van het EPD liep al jaren vertragingen op, en nu zorgaanbieders zich eindelijk kunnen aansluiten, verloopt ook dat erg traag. Die conclusie kan getrokken worden na analyse van de voortgangsrapportage die minister Klink (VWS) naar de Kamer heeft gestuurd.
In de voortgangsrapportage staat het getal 574 dikgedrukt. Het gaat hier om het aantal aanbieders dat is aangesloten op het landelijk EPD. Dit moeten er uiteindelijk echter bijna 6.500 worden.”
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“Een kleine half miljoen Nederlanders wil niet in het elektronisch patiënten dossier (EPD) van minister Ab Klink worden opgenomen. Uit cijfers die De Pers bij het ministerie van Volksgezondheid opvroeg, blijkt dat er inmiddels 462.000 bezwaren zijn binnengekomen. Een stijging van 40% ten opzichte van begin vorig jaar, toen de teller op 330.000 bleef steken. Volgens voorstanders zou het EPD medische missers moeten voorkomen en levens redden, maar dat is nooit bewezen.”
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Security.nl, 11 februari 2010

Dames en heren genodigden, experts, Kamerleden, leden van het Rathenau Instituut, de ondersteuning en Peter van der Geer, de leider van het debat van vandaag. Ik heet u allemaal van harte welkom op deze bijeenkomst over het wetsvoorstel 31466, kortweg het EPD genoemd. Dit wetsvoorstel is op 9 februari 2009 in de Tweede Kamer aangenomen. Op 10 maart heeft de vaste commissie voor Volksgezondheid, Welzijn en Sport/Jeugd en Gezin van de Eerste Kamer besloten dat zij tot behandeling zal overgaan. Daartoe hebben wij op 15 mei een voorlopig verslag opgesteld en vervolgens hebben wij op 7 september een memorie van antwoord gekregen. Deze memorie van antwoord beantwoordde veel vragen, maar riep ook veel vragen op. Ook vonden wij dat niet alle vragen adequaat waren beantwoord. Na overleg binnen onze commissie bleek dat er een grote behoefte bestond aan het vergroten van onze kennis en ons inzicht. Wij wilden graag experts horen op allerlei gebied en die experts zitten nu hier, bijgestaan door hun secondanten die natuurlijk ook van harte welkom zijn. Wij hebben de experts gevraagd een position paper te formuleren en op basis van die position papers heeft het Rathenau Instituut een startnotitie opgesteld.
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“Het Elektronisch patiëntendossier (EPD) is opgezet als een systeem waarmee hulpverleners voor hulpverleningsdoeleinden toegang kunnen krijgen tot gegevens over de patiënten die zij behandelen. Toegang voor anderen dan hulpverleners en voor andere doeleinden verdraagt zich noch met de opzet van dat systeem noch met de juridische legitimatie daarvoor. In de Tweede Kamer is het voorstel van Wet op het EPD geamendeerd, waarbij een aantal bepalingen is toegevoegd waarin nog eens expliciet de toegang voor bedrijfsartsen, keuringsartsen en zorgverzekeraars wordt uitgesloten. In die bepalingen zijn echter ook uitzonderingsgronden opgenomen in verband waarmee wel toegang tot het EPD mogelijk moet zijn. In het aan het College bescherming persoonsgegevens (CBP) voorgelegde voorstel tot wijziging van het Besluit BSN in de zorg zijn die uitzonderingsgronden voor zorgverzekeraars verder uitgewerkt. Het CBP heeft in zijn advies over het conceptbesluit de minister van Volksgezondheid, Welzijn en Sport geadviseerd de uitzonderingsmogelijkheden op het verbod op toegang tot het EPD voor verzekeraars niet alleen in het Besluit maar ook in de Wet op het EPD te schrappen. De minister heeft inmiddels aangegeven dat hij het advies van het CBP overneemt en de Tweede Kamer een voorstel tot wijziging van de wet zal voorleggen.”
Artikel
CBP, 9 februari 2010

“Het artikel dat onlangs is verschenen in Medisch Contact over het EPD en de gevaren voor de privacy bevat onjuistheden en is tendentieus. Dat stelt Stephan Koole, directeur voorlichting en communicatie van het ministerie van VWS, in een reactie op het artikel op de website van Medisch Contact.
Het artikel is gebaseerd op stukken die op grond van de WOB zijn verkregen van het CBP. Deze documenten gaan volgens Koole echter maar tot 2008 en intussen hebben er verdere ‘aanscherpingen’ plaatsgevonden van het EPD-wetsvoorstel.”
Artikel
ICTzorg, 9 februari 2010

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“Het ministerie van VWS maakt in een brief aan het College Bescherming Persoonsgegevens duidelijk dat toezicht houden op inzage in het Elektronisch Patiënten Dossier (EPD) vrijwel onmogelijk is. Schokkend, zo vindt de CG-Raad. Angst voor misbruik van het EPD is de belangrijkste zorg van mensen die bezwaar aantekenen tegen het EPD. Op dit moment hebben 450.000 mensen bezwaar aangetekend. Uit onderzoek van Webwereld en Medisch Contact blijkt dat toezicht houden op wie er in het EPD kijkt een bijna onmogelijk taak is.”
Artikel
Zorgkrant, 8 februari 2010

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“Heel veel mensen krijgen toegang tot het EPD. Hoe het toezicht op misbruik wordt geregeld, blijft vaag. Niemand wil het doen, het is eigenlijk niet mogelijk en veel geld is er niet.
Er zijn nogal wat mensen die toegang krijgen tot het medische dossier. Wie geen bezwaar heeft gemaakt opent zijn of haar dossier voor een lange en brede lijst van mensen in de zorg. Dat omvat de verpleegkundige, doktersassistente, fysiotherapeut, artsen uit het gezondheidscentrum, patholoog, en apotheker.”
Artikel
Brenno de Winter, Webwereld, 3 February 2010

Ik ga er vanuit, dat Brenno de Winter’s “Toezicht op toegang EPD schiet ernstig tekort” qua inhoud correct is, en niets van wat ik lees doet me daaraan twijfelen.

“Er zijn nogal wat mensen die toegang krijgen tot het medische dossier. Wie geen bezwaar heeft gemaakt opent zijn of haar dossier voor een lange en brede lijst van mensen in de zorg. Dat omvat de verpleegkundige, doktersassistente, fysiotherapeut, artsen uit het gezondheidscentrum, patholoog, en apotheker. […] Maar daarnaast ook vakgenoten die om advies wordt gevraagd, co-assistenten, medisch studenten, biochemici, fysici, paramedici, en diëtisten. En tot slot ook spelbegeleiders op een kinderafdeling, secretaressen, functionarissen belast met het feitelijk beheer van het patiëntendossier en functionarissen belast met de financiële afwikkeling, en mensen die rechtstreeks betrokken zijn bij de medische behandeling.”

“De regels zijn volgens het ministerie wel duidelijk. Er mag alleen dan in het dossier worden gekeken als er sprake is van een behandelrelatie tussen arts en patiënt. Maar in de adviesaanvraag aan het CBP erkent het departement ook meteen dat dit technisch eigenlijk niet te controleren valt.” Lees de rest van dit bericht »

“medischegegevens.nl maakt persoonlijke medische informatie direct toegankelijk voor patiënten in een veilige internet-omgeving.
De patiënt beschikt over een dynamische “gezondheidskluis” waarin hij of zij van het ziekenhuis zijn medische data ontvangt, opslaat, zelf raadpleegt of anderen autoriseert om te kijken. Overal en altijd toegang tot eigen medische gegevens zoals bekend bij het ziekenhuis.”
Artikel
NPCF, 2 February 2010